PATIENT PARTNER RESEARCH OPPORTUNITIES
Teen Concussion Recovery Working Group
We are seeking teens with lived experience of concussion and their caregivers for a research working group.
OPPORTUNITY PURPOSE
The MyGuide Concussion -Teen Edition website was created to help teens recover after concussion. The website addresses teen-specific concerns and can be used by teens and their families, as well as by teachers and coaches. Teens with lived experience of concussion, along with their caregivers, are invited to join a virtual working group to review the website and help to develop a research study investigating its acceptability and utility.
WHAT’S INVOLVED
Teens and their caregivers will attend five virtual meetings with GF Strong clinicians and researchers to:
Identify important questions to ask study participants about the MyGuide Concussion-Teen Edition website
Ensure that study materials are understandable to teens and caregivers
Develop a study recruitment plan
Generate ideas about how the website can be better designed based on data collected from the study
Decide how to share the research findings with the community. To prepare for meetings, patient partners may be asked to review materials (e.g., the existing MyGuide Concussion-Teen Edition website, recruitment flyers, research summaries).
ELIGIBILITY
Youth ages 12 to 18 who have experienced a concussion and are at least one-month post-injury
Parents and/or legal guardians of a child aged 12 to 18 who has experienced a concussion
Caregivers and youth may participate in this opportunity together (e.g., as a caregiver-adolescent pair) or individually
Youth and caregivers should be comfortable with computers and technology and able to read and understand English.
Open to BC or Yukon residents only
Patient partners will be compensated $25 per 1-hour group meeting (e.g., up to $125). A reference letter can be provided for high school students completing volunteer/career preparation requirements
FOR MORE INFORMATION & TO APPLY
If you are interested in being involved in this project or have any additional questions, please contact Dr. Molly Cainrcross at mcairncr@sfu.ca
Principal Investigators: Dr. Molly Cairnrcross (Simon Fraser University) & Dr. Jacqueline Purtzki (GF Strong Rehabilitation Centre - Adolescent Complex Concussion Clinic)
Posted July 04, 2023